Wholistic Healing Summit 2025
Empower yourself at the Wholistic Healing Summit. Discover treatments, support, and community for those affected by Lichen Sclerosus.
Related Articles
Welcome! You are invited to join a webinar: NORD Grassroots Advocacy Training: Protect Medicaid . After registering, you will receive a confirmation email about joining the webinar.
In the coming months, Congress could vote on legislation that would strip Medicaid coverage and funding away from millions of rare disease patients. Please join…
Rare Action Network (RAN) on the Road – South Portland, ME
Take this survey powered by surveymonkey.com. Create your own surveys for free.
The Transverse Myelitis Association is becoming SRNA
The same organization on a mission, to CONNECT people, CARE for those who are affected, and working to find a CURE ending rare neuroimmune disorders
Focus of NORD study: Rare disease community’s lived experiences
NORD has launched a U.S. study called Living Rare to capture the lived experiences of rare disease patients and identify changing unmet needs.
International MSA Congress – Mission MSA
MSA Center of Excellence (COEs or Centers) programs provide education in the areas they serve, will be involved in and inform patients of MSA
2025 Science of Patient Engagement Symposium – National Health Council
The only event where research leaders convene to share their experiences, accomplishments, best practices and resulting impacts on the science of patient engagement with a…
NORD Scientific Symposium – Advancing Innovation in Rare Disease Research
Rare disease breakthroughs require collaboration. Join a community of researchers, clinicians, industry leaders, and others at the NORD® Rare Disease Scientific Symposium to share knowledge,…
RareAction Network
The RareAction Network ®, powered by the National Organization for Rare Disorders (NORD), serves to connect and empower a unified network of individuals and organizations…
Undiagnosed Day: Medical Students Work to Change Rare Disease Curriculum – National Organization for Rare Disorders
The students’ journey began at NORD’s 2022 Breakthrough Summit, which they attended as members of NORD’s Students for Rare program. Their discussion centered
aPAP EL-PFDD Meeting Registration – National Organization for Rare Disorders
Autoimmune Pulmonary Alveolar Proteinosis (aPAP) is a rare lung disorder affecting approximately seven people per million. The disease affects individuals of all races, geographic regions,…