The students’ journey began at NORD’s 2022 Breakthrough Summit, which they attended as members of NORD’s Students for Rare program. Their discussion centered
In the coming months, Congress could vote on legislation that would strip Medicaid coverage and funding away from millions of rare disease patients. Please join…
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The same organization on a mission, to CONNECT people, CARE for those who are affected, and working to find a CURE ending rare neuroimmune disorders
NORD has launched a U.S. study called Living Rare to capture the lived experiences of rare disease patients and identify changing unmet needs.
Empower yourself at the Wholistic Healing Summit. Discover treatments, support, and community for those affected by Lichen Sclerosus.
MSA Center of Excellence (COEs or Centers) programs provide education in the areas they serve, will be involved in and inform patients of MSA
The only event where research leaders convene to share their experiences, accomplishments, best practices and resulting impacts on the science of patient engagement with a…
Rare disease breakthroughs require collaboration. Join a community of researchers, clinicians, industry leaders, and others at the NORD® Rare Disease Scientific Symposium to share knowledge,…
The RareAction Network ®, powered by the National Organization for Rare Disorders (NORD), serves to connect and empower a unified network of individuals and organizations…
Autoimmune Pulmonary Alveolar Proteinosis (aPAP) is a rare lung disorder affecting approximately seven people per million. The disease affects individuals of all races, geographic regions,…
