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    09 March 2023 Researchers in the CLUSTER consortium want to hear from professionals who are involved in JIA-uveitis care and/or research as part of their EYE-CHART study. The EYE-CHART study will help determine which data items are most important for future JIA-uveitis research data sets.“This is a great opportunity to learn from your expertise on the most…

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    • Are you a professional involved in #JIA or #uveitis care/research? Researchers at @CLUSTER_Tweet need your help! Fill in their EYE-CHART study survey to help them work towards combined datasets which will improve future research: https://t.co/yrhbprf0jZ Please RT and share. https://t.co/wlFK4jNyAi

  • Mashup Score: 1

    Background Dry synovitis (DS) is a rare entity as only a few cases have been reported to date. We describe the clinical features, radiological manifestations and course of DS in comparison with rheumatoid factor negative polyarticular juvenile idiopathic arthritis (RFneg-polyJIA). Methods We performed a multicenter retrospective collection of data of DS patients who presented with progressive…

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    • "Dry Synovitis" exist in juvenile arthritis pts? Study of 12 DS pts, says its different from Poly #JIA; onset 6.1 yrs, w/ polyarthritis, no palpable swelling, progressive LOM/contractures, neg ESR/CRP/RF/CCP, +MRI synovitis w/ osteochondral involvement.https://t.co/okGPCsIPNs https://t.co/XlFhgTtq5b

  • Mashup Score: 3

    Background Dry synovitis (DS) is a rare entity as only a few cases have been reported to date. We describe the clinical features, radiological manifestations and course of DS in comparison with rheumatoid factor negative polyarticular juvenile idiopathic arthritis (RFneg-polyJIA). Methods We performed a multicenter retrospective collection of data of DS patients who presented with progressive…

    Tweet Tweets with this article
    • "Dry Synovitis" exist in juvenile arthritis pts? Study of 12 DS pts, says its different from Poly #JIA; onset 6.1 yrs, w/ polyarthritis, no palpable swelling, progressive LOM/contractures, neg ESR/CRP/RF/CCP, +MRI synovitis w/ osteochondral involvement.https://t.co/tL2G7QKBL4 https://t.co/k4QoAmTGYA

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    In addition to addressing important questions related to disease pathogenesis, timely diagnosis, and adequate management, paediatric rheumatology research should address unmet patient needs. The aim is to improve patient outcomes and minimisation of long-term irreversible damage—aspects that are particularly relevant for diseases with childhood onset. Evidence-based recommendations and…

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    • ICYMI, in our January issue—Whole-body MRI for juvenile idiopathic arthritis https://t.co/7BVCPKU2Ob #JIA https://t.co/yj98iMb6Vg

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    We encourage all of our members and external parties to access and analyse the rich registers data sets. Requests to conduct research with the Rheumatoid Arthritis (RA) and Ankylosing Spondylitis (AS) registers data follow a formal process

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    • Our biologic and biosimilar registers are a rich source of evidence for clinicians and researchers! Interested in gaining access to a dataset from any of our registers (@BSRBR_RA, #PsA, or #JIA @BCRD_Study)? Find out how to apply here: https://t.co/Bgt7Z5w27t https://t.co/jctTGo26hE

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    What are the studies about? Two studies called Biologics for Children with Rheumatic Diseases (BCRD) and BSPAR Etanercept Study (BSPAR ETN) are underway at hospitals throughout the UK to look at the safety and effectiveness of biologic and biosimilar treatment for Juvenile Idiopathic Arthritis (JIA). As part of the studies, long term follow-up…

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    • We're seeking people with experience of JIA, either young people or their parents, to participate in shaping research into new treatments for #JIA. Find out more and join the UK JIA Biologics Register Scientific Steering Committee➡️https://t.co/4ShTII3vIr @BCRD_Study https://t.co/bDerb6vsLK

  • Mashup Score: 2

    What are the studies about? Two studies called Biologics for Children with Rheumatic Diseases (BCRD) and BSPAR Etanercept Study (BSPAR ETN) are underway at hospitals throughout the UK to look at the safety and effectiveness of biologic and biosimilar treatment for Juvenile Idiopathic Arthritis (JIA). As part of the studies, long term follow-up…

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    • The UK JIA Biologics Register is a research study that monitors the safety and effectiveness of new JIA treatments. Their steering committee is looking for people who are keen to help shape this research. Find out how to get involved: https://t.co/4ShTII3vIr @BCRD_Study #JIA https://t.co/6xAr7yhKDr

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    For our final Facebook Live this year, we will be discussing the UK JIA Biologics Register with Dr. Lianne Kearsley-Fleet. Find out exactly what the JIA Biologics Register is, how you can get involved and why it’s such an important piece of research. Meet our speaker Lianne Kearsley-Fleet is a researcher and epidemiologist working at […]

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    • In just a few days, Dr Lianne @KearsleyFleet from the BSR JIA Register will be on the @NRAS_UK Facebook live session on 30 November, 7pm. Lianne has over a decade of #JIA research experience, so it will be a great chance to submit questions in advance. https://t.co/ZPrhbnSUjP