Alex Smith’s daughter Georgina was born with a heart problem which went undetected until she was almost two and a half. Georgina’s condition was missed at the 20-week scan during Alex’s pregnancy as well as on other occasions where Alex took Georgina to see medical professionals due to her concerns about Georgina’s health. Georgina was […]

Molly was born on 15 December 2001 with Truncus Arteriosus type one with a ventricular septal defect (VSD) and an atrial septal defect (ASD), she had open heart surgery at three weeks old in January 2002. When Molly got older around the time she was about to start primary school, she began to question her mother Ita about her scars.  Molly’s questions and the difficulty Ita had trying to explain…

Henley was born with the heart condition, hypoplastic left heart and other complications. He has had open heart surgery three times and is on warfarin.

Told by his mother Julia Hugo was born in 2012 in poor condition with intrauterine growth restriction  (IUGR) and antenatally diagnosed Transposition of the Great Arteries. The first 24 hours were very stormy, he was stabilised after an urgent balloon septostomy at four hours old and went on to have a switch at ten days. […]

Told by her mother Katie In April 2015 we found out we were expecting our second child and we were obviously thrilled to bits. The pregnancy progressed normally until I had my 20 week scan, the sonographer found a problem with our baby’s heart and referred us to a consultant at our local hospital. 48 […]

Sebastian was three months old when it was found that he had a congenital heart condition. He had a ventricular septal defect and an atrial septal defect.

Told by her mother Natalie We had been waiting for the birth of our daughter Miley for years. We had fertility treatment to help conceive her and we were so excited to meet her. I had no complications in my pregnancy and we were told at the scans that the baby was healthy. However, at […]

Told by her mother Tas On the 22 February 2016 I was absolutely delighted to hold Sophia in my arms for the first time.  Apart from slight jaundice and not feeding much and being very sleepy, she was perfect, she was my 3rd child and weighing 9lb, also the heaviest.  I was told babies are […]